Expert Presentations

'Expert Presentations' image

The Nuts and Bolts of Patient Registries


Workshop Agenda

9:00am Registration

9:20am Welcome and Opening Remarks

Dr Avril Kennan, CEO, Medical Research Charities Group

9:30am Expert Presentations

These brief presentations will cover practical aspects of registries including, developing a dataset, managing data collection and storage, governance and funding

Dr Abaigeal Jackson - Research Lead, Cystic Fibrosis Registry of Ireland

Dr Conan Donnelly - Research Manager, National Cancer Registry Ireland 

Godfrey Fletcher - Chief Executive Officer, Cystic Fibrosis Registry of Ireland

Professor Anthony O'Regan - Dean of Postgraduate Specialist Training, RCPI; Consultant in Respiratory and Internal Medicine, University Hospital Galway; Professor of Medicine, NUIG

10:15am Patient organisation presentations and expert feedback

11:00am Coffee break and networking 

11:20am Audience and Expert Discussion


Expert and Patient Organisation Presentations